Radiation starts tomorrow

What a wonderful weekend with all my kiddos together! We laughed. We snuggled. We played. We skipped naps. We went to the zoo. We played in every toy room at St. Jude. We fussed at each other like brothers and sisters do.

We had fun as a family of five! The way it is meant to be.

Davis hopped up in the hospital bed with Bennett. Oh, he LOVED his big brother doing that. Bennett laughed more this weekend than I've heard him do in weeks:)

Davis hopped up in the hospital bed with Bennett. Oh, he LOVED his big brother doing that. Bennett laughed more this weekend than I’ve heard him do in weeks:)

Ben and the kids went home today (cue my tears), but we have a big day tomorrow to keep me occupied (and I have a dear friend visiting me too through the weekend!).

So tomorrow radiation begins. Our doctor was asking how I feel about it starting tomorrow and my first thought was, “I’m happy it’s beginning.” Wow, what I world I live in now where I’m happy with radiation. But we are. We completely trust that this is the next step for Bennett.

He will also be getting a feeding tube tomorrow while he’s sedated. Yay for nutrition, Boo that it has to go into his nose. But we do what we need to do to keep that little boy strong and healthy. So just know that future pictures of my handsome guy will include a new accessory on his face:)

So with all of these new procedures, we have new prayer requests too…

  • The most common side effects with radiation are nausea and skin irritation. We are praying complete protection over his body during this. Pray that he would escape the nausea and that his skin would not be bothered by the radiation.
  • Pray that the other organs near his liver are not bothered by the radiation at all.
  • His liver counts have been great lately. In fact, for the first time since we’ve been at St. Jude, his biliruben has been below 1.5. But radiation can make the liver grumpy sometimes so we are praying for a happy liver!
  • Pray that the radiation shrinks the tumor. I think of it like the Extreme Home Makeover show that says “Move that bus.” But instead we are all shouting, “SHRINK THAT TUMOR!”.
  • Pray that he doesn’t have the urge to pull out his feeding tube. He will get it while he’s sedated for radiation tomorrow, so hopefully it won’t bother him as much. And pray that mommy quickly gets used to it coming out his nose (I’m just not sure how I will react with seeing it there.)
  • Pray that we start to see his weight increase quickly. We need a healthy and strong body to fight this cancer!
  • Pray that Davis and Reide adjust to being back in Lafayette and away from mommy for another few weeks.
  • Pray that we find a place PRONTO to live here in Memphis. After the weekend of shuffling between two houses with all the kids, we realized we need to be under one roof (we considered keeping the Target house and another apartment). We NEED our family of five together…to enjoy breakfast with each other, snuggles at bed time and everything in between. And Bennett had so much laughter with those two here…he is not created to be an only child! I’m hoping to finalize it all by early next week.
  • Pray that I stop eating all of these thin mints….seriously, it’s out of control! Can you tell my tank is a little more full because I had all of my loves here?!

So set your alarms. Sedation begins at 11am then radiation will be around 11:45am. Let’s continue to pray healing over my boy! May all those prayers go through the radiation machine and zero in right on his liver…telling that tumor that it has NO POWER.

The only power is from God alone. And that power is shielding Bennett!

33 Comments

  1. I am praying for Bennett and the whole family. I pray extremely hard for the prayer request you ask for. You all are in my thoughts and prayers.

  2. Praying for all those things you listed above. I’m printing them out tomorrow and will pray and believe with you everyday until that little precious man beats this thing, in Jesus’ name!!!

  3. So glad for the update, as you all are continuously in my thoughts and my prayers. ..I will pray specifically for what you asked, and will pray for God’s grace and love to go before you and lead you on this journey. ..lifting you ALL up in prayer!!! Love to you all!!!

  4. Will be sending many prayers your way tomorrow! Your family is on my mind every day. So glad you had a fun weekend with all your babies together!

  5. We are praying for positive results from the radiation, no negative reaction to the radiation, an easy transition for the children returning back to Lafayette and strength for you Megan as Bennett takes the next step of his recovery because I need to continue to see his smile.

  6. I pray for you all throughout the day as I think of Bennett and your family. I will definitely be praying specifically for this next step with radiation.

  7. Praying Megan — Praying this Radiation gets to this Tumor and does what it’s MEANT to do. Praying that the Lord has His hands on all that is being done and directs that Radiation right to the Tumor and that it has the power it needs, the Power of the Lord, to quickly shrink this in Bennett. Praying that he gets and keeps the nutrients in his little body to help him stay strong and get healthy with the healing power of God. Praying that he stays “comfortable” through this so that he is able to tolerate all that is being done to make him well and heal him completely. Praying that the Lord is over the Doctors there at St. Jude and and gives them all they need to help complete this miracle for Bennett, and SWIFTLY. And of course, praying that all of you are together, as a family should be, not only for strength for you and your other little ones who are back in Lafayette away from their Momma, but that you all are together QUICKLY for Strength for BENNETT AS WELL because the happier he is, the more he feels his brother and sister there with him – the more strength and FIGHT he will have in him to keep his own little body and mind in the best frame it can be in.

    Won’t stop praying. Thank you for keeping us posted, and please PLEASE keep us posted on how things start with the Radiation and how he handles it along with more specific prayer requests after the Radiation and Feeding Tube start.

    All of our Love and Blessings,
    The Clooney Family

  8. Well, I’m saying my rosaries everywhere I go…on the treadmill even…everyone around me is praying…we will never stop…this tumor is going to shrink…Bennett is the strongest child I will ever know…his family is the strongest spiritually I will ever know…may we all get stronger because of your love of The Lord and each other. Thank you for also giving the dedicated medical staff at St. Jude’s a chance to do what they do best…all in God’s name.

    Keep strong, keep fighting. With God anything and everything is possible!

  9. In prayer…

    Malachi 4:2
    But for you who revere my name, the sun of righteousness will rise with healing in its rays. And you will go out and frolic like well-fed calves. (NIV)

  10. We pray alongside a host of friends for God sized actions in all that surrounds you and your family. May you be encouraged in knowing of these silent prayers, and those that share your sadness. We also share the joy of knowing God and the encouragement of our fellow believers.

  11. So glad for the updates! You are constantly in our thoughts and prayers and your family continues to inspire us all. God Bless you and wrap you in His loving arms!

  12. Praying that all goes well with radiation and feeding tube. I pray that the tumor will shrink and that the radiation will not effect any other organs and that there will be no ill side effects from the radiation and feeding tube. Blessed to hear that Bennett had a wonderful weekend with the whole family. God bless you in this new chapter of Bennett’s life.

  13. “Peace I leave with you; my peace I give you. I do not give to you as the world gives. Do not let your heart be troubled and do not be afraid,” John 14:27
    We are continuing in prayer for your family & meeting this morning our Moms Together group will pray for these specific needs. You are loved!

  14. Prayer and excercise together??? Every step of exertion on that elliptical is my
    visualization and prayer squeezing that tumor smaller and smaller and away
    from arteries and organs. Shrink that tumor in Jesus’ name we pray!

  15. So thankful for the weekend you had together and praying that a place will open up for all of you soon. I’m praying for complete annihilation of that stinkin’ tumor!! Love to all!

  16. Hi Megan,
    You guys are never far from my mind. However, listening to KLOVE this morning, I heard this song by Casting Crowns and immediately thought of you:

    Praise You in This Storm
    I was sure by now
    God You would have reached down
    And wiped our tears away
    Stepped in and saved the day
    But once again, I say “Amen”, and it’s still raining

    As the thunder rolls
    I barely hear You whisper through the rain
    “I’m with you”
    And as Your mercy falls
    I raise my hands and praise the God who gives
    And takes away

    Chorus:
    I’ll praise You in this storm
    And I will lift my hands
    For You are who You are
    No matter where I am
    Every tear I’ve cried
    You hold in Your hand
    You never left my side
    And though my heart is torn
    I will praise You in this storm

    I remember when
    I stumbled in the wind
    You heard my cry
    You raised me up again
    My strength is almost gone
    How can I carry on
    If I can’t find You

    As the thunder rolls
    I barely hear You whisper through the rain
    “I’m with you”
    And as Your mercy falls
    I raise my hands and praise the God who gives
    And takes away

    Chorus:

    (2x’s)
    I lift my eyes unto the hills
    Where does my help come from?
    My help comes from the Lord
    The maker of Heaven and Earth

    Chorus:

    Peace and Blessings! I hope Bennett’s procedure wasn’t too harsh on him and you this morning.

    Love,
    Ann

  17. The past few weeks my boys have been keeping me up all hours of the night. I want you to know you have been covered in prayer in the middle of the night and early, early morning hours nightly. I have been on my knees or face (literally) praying for your specific requests everytime. We love you all!

  18. So glad you had such a good visit with family! You sound strengthened from last week’s desperate request of prayer! Everything you asked in prayer was what I prayed for the day before!!! How awesome our God knows before we ask! Continue to be strong for this to shall pass and soon we will all celebrate Bennett’s miracle healing! Praying always for y’all! I so it would want to come keep you company while you are there, even though we meant only once my heart is hurting for you! Love in Christ, Gwen

  19. Megan,
    I know we’ve never met but I just want you to know that I along with tons of people you don’t know have been praying constantly for your family and for baby Bennett’s healing. I hold my own babies a little tighter every night since first learning about Bennett’s struggles, and hearing your perspective and reading about how you are trusting in God completely and praising him through this encourages me so much. I know God will heal in His time and in His way. We will not stop praying. We are in this with you, sister!

  20. I pray that Bennett’s first radiation treatment went as planned. May the Lord protect & heal him. I’ll be praying for your specific prayer needs. So great that you were all able to spend family time together. Good to see the smiling faces.

  21. Megan and Ben..my every day is filled with continuous prayer for our Little Hero and all of you. I appreciate the updates and look for them repeatedly thru out the day…thank you for those and the specific prayer requests…they give me direction and guidance. My constant love to all of you and I pray that you will all be together soon.

  22. I’ve been praying for Bennett as well as your entire family since pretty much the beginning of your journey. I’ve been friends and worked with Meg at State Farm for quite a while. I love her so I couldn’t help but love and pray for Bennett and you all. I’ve had email problems and have had to change. I’m hoping you could change it so I continue to get your blog updates. It’s: Judy.ray1@yahoo.com. Thank you so much, what a joy it is to join you in prayer. JudyRay…Philippians 4:13

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