New Answers & New Questions

Thank You!

We want to first let you know how encouraged we are each day by your notes, texts and Facebook posts. We also want to encourage you to never forget the single most helpful thing you have done (and are continuing to do) is pray! Let me just remind you of the power of prayer.

“Are any of you suffering hardships? You should pray. Are any of you happy? You should sing praises. Are any of you sick? You should call for the elders of the church to come and pray over you, anointing you with oil in the name of the Lord. Such a prayer offered in faith will heal the sick, and the Lord will make you well. And if you have committed any sins, you will be forgiven. Confess your sins to each other and pray for each other so that you may be healed. The earnest prayer of a righteous person has great power and produces wonderful results.” (James 5:13-16)

“Whatever you ask in my name, this I will do, that the Father may be glorified in the Son. If you ask me anything in my name, I will do it” (John 14:13-14 )

“Then they cried to the LORD in their trouble, and he delivered them from their distress. He made the storm be still, and the waves of the sea were hushed. Then they were glad that the waters were quiet, and he brought them to their desired haven.” (Psalm 107:28-30)

So please…keep making time to #Pray4BabyBennett!

Bennett in the Isolation Room where he has to get a robe and a mask so he won't spread his RSV to other children.

Bennett in the Isolation Room where he has to get a robe and a mask so he won’t spread his RSV to other children.

Update from our meeting today

Today we met with the team that will be taking care of Bennett. Dr. Sarah is his oncologist and Dr. Langham is his surgeon. We are thrilled to have them working on our son. Megan made an instant connection with Dr. Sarah and Dr. Lagham is “They Guy” for child liver tumors. He literally wrote the book on how to deal with these. We are not only in great hands in terms of The Lord fighting for our son, but we are also in great humans hands as well. Thank you, God!

So what was the news? Here are the answers we got.

  • Dr. Langham confirmed that chemotherapy is needed to first shrink the tumor. It is just too close to a major vein and is currently the size of an orange. Trying to remove it now is a greater risk than is necessary at this point.
  • So…Monday, January 6th, a biopsy will be done and port for administering chemotherapy will be installed. It can’t be done any sooner due to holidays, pre-operation tests and the need to recover from his RSV a little more.
  • We will know the results of the biopsy by the middle of next week and begin treatment as promptly as we can.

But here are some of the questions that we now have.

  • The spots on Bennett’s lungs are inconclusive. They are either spots left from a past infection or they are small tumors showing that the disease has spread. They are too small to biopsy or even find in surgery. They will just have to be monitored.
  • Bennett’s AFP (alpha-fetoprotein) levels in his blood were expected to be high…over 100. A healthy person’s AFP levels are between 10-12. High AFP levels are a classic sign that a tumor is indeed malignant. But the test showed that Bennett’s AFP levels are 14. This is either really good news or really bad news. It could be good news because that means there is a possibility that this tumor is actually benign. The doctors believe this is a slim chance…but not a 0% chance. So this is what we are praying for!  But it also can be bad news.  The reason is that sometimes tumors are still malignant even if the AFP levels are low. These tumors are very aggressive and normally do not respond to chemotherapy well.  They are running another test on his blood to confirm his AFP levels to make sure there was not a lab error.

So there are four different scenarios that could play out.

  1. The biopsy could show that the tumor is benign and they go back in and take out as much as they can and then get rid of the rest through other non-chemo treatments.
  2. The biopsy could show that he has hepatoblastoma and the new AFP test comes back high. This would lead to normal treatment.  Shrink the tumor and then remove it.
  3. The biopsy could show that he has hepatoblastoma and the original AFP test was correct. They would still do chemotherapy first to try and shrink the tumor.  But if it doesn’t respond well after two rounds, they would then begin looking at a complete liver transplant.
  4. The biopsy could show he has another form of liver cancer other than hepatoblastoma. If this is the case, we are looking at a similar route as an aggressive form of hepatoblastoma. They told us all the other forms of malignant liver tumors are just as difficult to treat with chemotherapy as an aggressive form of hepatoblastoma.

So even though we are still having to wait to get going…we have some direction, and that feels great.  And while it’s never fun to hear doctors talk about aggressive tumors and possible liver transplants in your son’s future, I had to remind myself that only one thing changed today…my knowledge.  That’s all.  The disease did not get worse since yesterday and while this is all news to us…it’s not news to God.  We are still trusting His plans because we believe this to be true…

“And we know that in all things God works for the good of those who love him, who have been called according to his purpose.” (Romans 8:28)

Thank you again for lifting up Bennett without ceasing.  Pray this thing is benign.  If it is not benign, then we are praying that chemotherapy will knock it out and make surgery easy.  Join us in this prayer and also for the doctors to continue to have great wisdom.  Amen!

36 Comments

  1. Praying for yall that yall just live day to day and never forget where your strength cones from. Strength for you two as your son is going through this and peace that only God can give you. Praying that God would give wisdom and the answers to the doctors and complete healing for Bennett. That God would use yalls faith as a testimony to bring Him glory in this situation.
    Most if all yall feel the hundreds if not thousands of prayers coming before the throne on yalls behalf.

  2. My dear friends, Ben and Meghan, y’all are in my heart and prayers constantly. I have my office praying too. Much love and God’s protection on all of your family
    Love & hugs,
    Cathy and Jim

  3. Praying earnestly for Bennett. I’ve asked a relative and a friend to check in on y’all. You guys are mucho loved. Wasn’t going to write mucho but that fits. Love y’all big time.
    JB

  4. Definitely joining you in prayer. Lifting up Bennett, his doctors, and his Mommy and Daddy. Praying for super-natural strength, wisdom, peace, healing… that only comes from God. We love you!

  5. We are and will continue to join you in these prayer requests. What an awesome testament of faith that both you and Megan are displaying throughout all this. Even in the midst of this, you are still continuing to be a blessing to others…Amazing! “Whatever is born of God overcomes the world; and this is the victory that has overcome the world—our faith.”
    1 John 5:4
    Praying that your Faith will continue to support you.

    1. Keep the Faith!!! Amen. In exodus 14: 13-14 says, moses said to the people, don’t be afraid. Stand firm and see the Lord’s salvation. He will provide for you today, for the Egyptians you see today, you will never see again. The Lord will fight for you; you must be quiet….some verisons say sit back and watch the Lord rescue you today. He can and he will do this. No matter what God is the Great I AM.

  6. I heard of your story from my sister, Ali Moore. Her oldest son, my nephew, was a patient at St Jude. Will became sick at the end of his 1st grade year, but if you saw him now you would never know! Today he is about 6ft tall and in the 9th grade.

    My family will forever be grateful to all those who prayed us thru that very stressful, difficult, scary time. We can also not say enough good about St Jude and all those that work
    there. They are WONDERFUL. You are in the BEST place for this journey.

    Hang in there! God is good all the time!

    Prayers-
    Rebecca Atkinson

  7. I am left with the strongest feeling that as you hold Bennett in you arms God is holding your whole family and medical staff in His hands… Your faith and strength are a testament to His power and love…He will never let you all go…I, my husband, our entire family and body of friends will keep praying continuously for Bennett and all the other St. Jude children and their families for well being for body and soul. Without prayer we would be helpless to support you… Our prayers will never stop.

  8. God is amazing. Effective prayer. Thanking God in advance for it being benign, thanking God for answering prayers of having all the best doctors and nurses for Bennett, thanking Him for even giving y’all strength to keep us updated, thanking Him for davis and reide not having rsv and making it to dallas safely, thanking Him for giving megan that strong husband ben, thanking Him for bennett not being in unbareable pain. Despite all situations something to be thankful for, God is answering our prayers so everyone keep praying!

  9. So do not fear, for I am with you; do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand. (Isaiah 41:10 NIV)

    This was my verse of the day. GOD is so good! Love you all.

    k

  10. Last night I was thinking/talking about Bennett with my husband with Tenth Ave North’s song “Torn” came on the radio. Even though this is a wearing time for your family and there may be times that you are so exhausted and feel like you can’t go on, try to remember the lyrics of the chorus:

    “And I know that you can give me rest
    So I cry out with all that I have left

    Let me see redemption win
    Let me know the struggle ends
    That you can mend a heart
    That’s frail and torn
    I wanna know a song can rise
    From the ashes of a broken life
    And all that’s dead inside can be reborn
    Cause I’m worn”

    God will answer our prayers when we cry out! Praying for your beautiful baby today!

  11. We continue to pray for Bennett and you guys. The Grace and Power of Our Mighty God and the prayers of those you know and the many you don’t know are covering all of you.

  12. There is so much wisdom in the statement “the only thing that changed today is I have more knowledge”. Praying that the Lord continues to sit beside you all, providing rest, comfort and wisdom and that He continues to hold Bennett in His arms of love and complete healing.

  13. Please know of my thoughts and prayers during these days of unknown with precious Bennett! The unknown to us is the KNOWN to our God and I pray HE holds you close as you hold Bennett close as HE unfolds HIS plan. Your faith is such a testament to HIM and strength for others to hold on to as they watch from the distance. I pray for strength, grace, wisdom and discernment during these days! I pray for total healing for your precious one. Blessings, Bev. Allen, Children’s Minister, Hyde Park Baptist Church, Austin.

  14. Ben and Megan,

    Our family is praying for Bennett and for your family. You are so right that nothing has changed except that you have more knowledge, God has known all along. We pray with you and stand with you. Please know that we are all like Aaron and Hur holding Moses’ hands up during the battle. We are holding your arms up and praying with you. Our love to your whole family.

    Tricia (Roachelle) Mills

  15. Calvary Chapel of Flower Mound, Texas is praying for Bennett and you all. Thank you for ministering by sharing your journey. The God who created and sustains ever molecule of the universe is with you!

  16. Our Moms Together Bible Study is Beth Moore’s Living Beyond Yourself , Exploring the Fruit of the Spirit.. This week, we are looking at kindness using the story of Abraham, Sarah and Hagar. Looking more specifically God’s kindness to Hagar when she was sent away from Abraham & Sarah when Ishmael was 14 as found in Genesis 21.
    I feel lead to share these words of Beth Moore with you.

    “God’s heart broke at the sight of this mother and son confronting the frightening prospect of death.. . . . . . . . .then God unleashed His loving kindness. He refreshed and restored both mother and child. . .and vowed to abide with the boy as he grew. As we reflect on the encounter between God and Hagar, it seems we witness not only the compassion and sympathy of God, but also the empathy of God. He could relate to her pain and need, so He responded to Hagar as a loving God and as a fellow parent.

    Might this have been the response of a Father who knew one day He also would face the intense pain of separation? Did God anticipate the torment of watching His only Son suffer . . .the agony of knowing He’d turn His back on His child as He died? This was a Father who proudly proclaimed, “This is my son whom I love; with him I am well pleased” (Matt3:17) He was also a Father about whom Christ would say, “You loved me before the creation of the world” (John 17:24) and moments later cry “Abba, Father ….Take this cup from me” (Mark 14:36) and hours later, “my God, my God, why have you forsaken me?” (Matt 27:46). . . . . . . . . . . . .
    God knows the intense pain of intense love. If you are a parent, you have already experienced fear, vulnerability, and pain. And the Father hasn’t missed one second of your parenthood. If you have a child who is rejected by his peers, God knows how you feel. If you have a child who is not beautiful to look upon, He knows how you feel (see Isa.53). If you have a child who has been betrayed by her friends, He knows how you feel. If you have a child who has begged you to “fix” something you could not fix, He knows how you feel. If you have a child who is suffering, He knows how you feel. If you have a child who is dying, He knows how you feel. If you have buried a child, He knows how you feel. He’s been there too. However there is one big difference. He could have changed every bit of it. But He didn’t. For you and me.

    If you’re a hurting parent right now, allow God to open your eyes as He did Hagar’s. Let Him refresh you at the well of the Living Water. Like Hagar, your child may be totally restored to you. Or, like the trusting but brokenhearted mother named Mary, you may have to let your child go. God loved no mother on earth more than the one He chose for His Son. Yet she was unable to hold Him in her grasp for as long as she wished.
    You are richly loved, do not give up!

    Megan, your family is being lifted to our Father who knows what you are enduring. We are praying for complete healing for Bennett and peace for your family.
    In Christ’s love
    Joyce

  17. Charles and I are praying daily for Bennett and your family. I know Gods will will be done and he will give you strength for what ever his plan is for you. God bless you all.

  18. Ben and Megan,
    We have been praying for all of you since we heard about baby Bennett’s health condition. His name has been put on several church prayer lists and we’ve shared his story with numerous friends and our family as well. He is being covered with prayer daily. We do pray for a miracle and trust God will keep you during these difficult days. May His peace be yours each step of the way.
    Glenn and Camilla Dyer

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