If you want all the details you can read the whole post. But for those that want a quick update here is what’s going on and what we need prayer for.
- The pathologist does not think Bennett has Hepatoblastoma so they are going to run every test they can on the biopsy sample to determine what it is. The earliest we will know if it is malignant or benign and what exact treatment is needed will be Friday. Pray they are able to get a definitive diagnosis and that we stay patient as we wait.
- Bennett seemed to be recovering well from the biopsy yesterday and rested a lot. But for some reason, he has taken a couple steps back. He would not sleep last night…at all…even with both Morphine and Benadryl. He also has a cough again and still tested positive for RSV. He is exhausted and as of writing this has not slept since his nap yesterday afternoon. Megan did not sleep last night either. Pray for her as she is very worried about her baby. Pray for the RSV to go away and for Bennett to sleep. The best thing to help him recover is sleep.
The longer story on the pathology report…
Our oncologist explained that when the pathologist looked at the biopsy sample under a microscope, he did not see something that looked like Hepatoblastoma. That’s not a confirmed diagnosis…it’s just that his trained eye was surprised at what he saw/didn’t see. So both our oncologist and pathologist agreed to to run every test they can all at once to figure this out…and that will take until Friday.What this means is there are lots of other forms of malignant tumors back on the table and most of them respond well to chemotherapy. So the good news is that they don’t think we are dealing with an aggressive tumor that is difficult to treat with chemotherapy. Our oncologist said these other types are extremely rare and that she is glad we are here…where they know how to treat them. We are too!
So…we wait for Friday (maybe?) to find out if it is malignant and if so, what form it is. Please pray for Bennett to recover from the biopsy between now and then and continue to pray that God will surprise all the doctors and let it be benign! After all…more time to wait means more time to pray!