A turn for the worse

I just can’t sugarcoat how yesterday went. It truly sucked. Like down to the core, worst day yet.

It was a day that I was not expecting. It was a day that I’ve been praying against. It was a day that I cried more tears than I could count.

It started with Bennett getting a CT scan early Friday morning and then we went to the Medicine Room for some routine medicine. I started noticing that his breathing was becoming very labored. When I mentioned it to the nurse, she called our doctor who wanted to see us. So off to clinic we went. And I just knew when Dr. Sara walked into our room, she was concerned. And rightly so.

She explained that the tumors have grown in size and number. The one on his liver is starting to squish his kidney and the ones on his lungs are getting in the way of his breathing. And because it is advancing so quickly, he is no longer eligible for either of the trial drugs that we were hoping to start on Monday.

Yes, yesterday was the day the doctor said that we are out of medical options for Bennett. She’s going to try and get him a compassionate use for one of the drugs, but doesn’t think that he has enough time to be on it to see if it will work in shrinking the tumors.

Based on the aggressiveness of the tumors, they have told us he will probably only make it a few more weeks. WEEKS.

How do you even process something like that?

All I know is that I still believe in a God who heals. And the place God keeps taking me is in Hebrews…

So do not throw away your confidence; it will be richly rewarded. You need to persevere so that when you have done the will of God, you will receive what he has promised. For in a very little while, “He who is coming will come and will not delay. But my righteous one will live by faith. And if he shrinks back, I will not be pleased with him.” But we are not of those who shrink back and are destroyed, but of those who believe and are saved. (Hebrews 10:35-39)

So we will continue to live by faith and not throw away our confidence in a mighty God. He will not delay. And even though our hearts are heavy and overwhelmed right now, we know that God loves our little Bennett. And even though we are out of medical options, we are never out of God options.

From Ben:

We truly are never out of God options. Why? Because of the cross. Because of the resurrection. Davis and I talked a lot about heaven last night and the young children there that once had the same disease that Bennett is fighting. At the end, Davis said, “So for Bennett…it’s either life here or life in heaven.”

I’m glad someone in our family is processing this well! After I put Davis to sleep, I drove to pick up dinner for Megan and I just poured out my heart to God. It was my first moment alone yesterday and the first chance to sob. I confessed to Jesus that I was at the point where I only knew enough to put one foot in front of the other and keep breathing. I didn’t even know for sure how to feel in that moment. Do I stir up more belief or do I mourn?

God said to do both. I think that is His message for us all. You can do both without being a crazy person. You can set your mind and hands to mourn and care for your ailing child, and still let your heart still believe. Abraham did when God told him to sacrifice his son, Isaac. He mourned the suffering his son would endure, but believed God’s promise the world would be blessed through his offspring.

At the beginning, we invited you to join us in the waiting room and we never knew that thousands would take us up on that invitation. Now we are inviting you to join us in doing both…mourn and believe. Mourn Bennett’s pain, but also believe in the same power that raised Jesus from the grave will heal Bennett as well. #Pray4BabyBennett


    1. Ben – None of us know God’s plans. If nothing else, He is letting Little Bennet’s story teach us about His love and His power. By relating your family’s response to all this, you are building up the faith in the hearts of many people, including mine. We pray for you everyday.

      Ron Simpson

      1. Amen, Ron. They all have create for us more teachings of God than I have learned all my life!!! This is a testimony of a strong and faithful walk!!

    2. I know your pain, I lost my first born child, she lived for 2 days. At the time I didn’t understand why. There’s not a moment I don’ t think about her, but 42 years later my Great – Grandaughter was born on her birthday. I know this was in Gods plan for me. I have been blessed with 5 children, 13 Grandchildren and we are expecting our 7th Great grandchild. I know I will see her again, the love I have for her is with me always. My prayers are with you and your family. God will be with you to the end.

      1. This is truly very sad. I am mournful as I trust in The Lord to do an unimaginable work of healing for little Bennett. Blessed are they that mourn for they shall be comforted. Mathew 5:4


      For hope today, remember the end of the story-eternity with God! We are praying for you!! J’ean Bourque and family

  1. I’m so sorry for your pain and the pain of your family. I can’t imagine what it feels like to get those news. But one thing I know is that there is nothing too big for God. I’m praying for comfort for Bennett and peace for the family.

  2. Oh Ben and Megan….we so understand that place of mourning and hope. We planned our Stephen’s funeral as we painted the nursery in anticipation of his birth… The pain is so huge, but God’s love and purpose overarches it all and upholds us when the pain is too great. Praying along with you.

  3. Praying that God heals your sweet Bennett. Also, praying that He gives your family everything it needs to make it through this gut wrenching time.

    1. Father ease Bennett’s pain and suffering, Lord we give thanks for your grace and your powerful peace that passes understanding. I ask now for your tender mercies on this family. Jesus comfort and keep them….hold them close in love, you are mighty to save!! Heal him lord, Amen. My thoughts are with you, Stand firm in faith as you also mourn. God is with your family, as are we all in spirit and truth in the family of God. Im so sorry for your news, love you baby Bennett ~ Rita

  4. Ben and Megan, my heart is heavy as I pray with you. But our God is a great God and my hope is in him all day long. I will continue in pray for Bennett and the family. My prayer is for strength, peace and full body healing for Bennett and strength beyond what is normal for you.

  5. Believe and mourn — our God is faithful even in our time of deepest need. We pray He continues to strengthen you, hold you close, comfort and give you peace. Life here…or life in heaven – only a child shall lead them. We continue to pray for all of you.

  6. Our hearts and souls are right there with you dearest Megan and Ben. Davis spoke God’s truth. Thank God for speaking through him. Thank you both for pointing him to God and living it out daily. I pray for your strength to endure. I pray for some private time for each of you. I pray for Bennett.

  7. Davis has it right! We continue to stand with you in the Lord.

    The steadfast love of the Lord never ceases;
    his mercies never come to an end;
    they are new every morning;
    great is your faithfulness.
    “The Lord is my portion,” says my soul,
    “therefore I will hope in him.” Lamentations 3:22-24

  8. what awful words to ever have to hear but especially about your child. I’m praying and believing in miracles with tears streaming. I’m praying for healing and for peace. Both big miracles but our God is able.

  9. I have never even meet precious Bennett or your family but please know that my family is praying for you! I am so sorry for the news you received but stand on God’s faithfulness and know that He has so used your family thru this whole thing. Bennett has touched so many lives and have given so many hope! We will continue to stand with you in prayer!

  10. Mourning and believing with you, Megan and Ben. I’m still praying for little Bennett, who I’ve never met; but, who has captured my heart….

    1. We know all things work together for the good of those that love God and are called to His purpose. Hold on to our mighty God’s promises. He is not a God who lies. There is no doubt things will work out for your good. Our prayers are with you and your beautiful family.

  11. On our knees. On our faces. Broken hearted but yet full of hope. Lifting you and your family up to the God of all comfort, perfect love and strength.

  12. We love y’all and have been praying and will not stop. Hearts breaking for Bennett and for you. Words set nothing but His Word is for you all. Praying for peace that surpasses understanding while still asking for a miracle. Hang tightly to Him.
    Love y’all,

  13. We are mourning and believing with you and praying for sweet peace for your whole family. Please know that we cry with you and we continue to pray for each of you. We love you all.

  14. Just keep putting one foot in front of the other my friend…my heart is so heavy for you and your family…may you feel a peace that passes all understanding…God please help this sweet family

  15. Praying for baby Bennett healing and relief from pain and for his family for peace, strength, and comfort!!! Our God can do all things!

    1. As Bennett goes the through this as well as the rest of the family, my heart as a parent & as a believer goes out to you & is with you in prayers that ARE reaching God’s heart & hands. Our God IS able!

  16. Ben and Megan, Scott and I pray for your little one everyday. We are encouraged by your strength and belief that our God is the God of all things. We are very specific in our prayers asking God to heal Bennett this side of heaven. We know without a shadow of a doubt how powerful our God is and what He is capable of.
    Luke 1:37
    For nothing is impossible with God..
    Much love, Scott and Cat

  17. I am so very sorry and cannot begin to imagine what you are going through. I am struck by a part of our Priest’s homily at Easter Mass, where he reminded us that faith without TRUST is not really faith. May God wrap you and your entire family in His loving arms and guide you through the rough days ahead. Thank you for sharing your faith and your difficult journey. You, and certainly Davis, help us to better understand the workings of our God.

  18. Our precious Colemans, you are in our daily prayers and we will continue asking the Almighty and Gracious Lord Jesus for strengthening and comforting you. He is the Life! May Bennett be healed by God’s power!

  19. Psalm 55:22 AMP
    Cast your burden on the Lord [releasing the weight of it] and He will sustain you; He will never allow the [consistently] righteous to be moved (made to slip, fall, or fail). [I Pet. 5:7.] Megan and Ben, my heart is heavy and my spirit weeps with you. There is pain in mourning and strain in believing. But He has lavished His love upon us, and He sorrows with us because of the consequences of sin…that which sin has wreaked upon His people and His creation.
    Sweet Bennett is having to bear in his body the consequences of sin, not his but Sin, and you have to watch, just as our Father watched His Son. It is pain out of the cross. Cling to the cross and the empty tomb. Continue in your faith in a good God, no matter what path this takes. Please know how much we love you and are fervently praying. Even so come quickly for us, Lord Jesus!

  20. I pray for comfort and strength for Bennett. I pray he feels no more pain, but feels strong and knows that he is loved with an everlasting love by his Abba Father as well as his parents and family. I pray for Bennett’s family. I do not any of you, but I know the love for someone so amazing. I pray you all continue to feel God’s love and comfort, His peace knowing that “for Bennett…it is either life on Earth or life in Heaven.” As hard of a time as y’all are going through at this moment (and I so wish that you didn’t have to go through this time), you will have Bennett forever, and live with him for eternity. God has promised you that. I pray for every doctor, nurse, housekeeper, dietary person, radiologist, and every staff member in that hospital. I pray for compassion and wisdom in dealing with this issue. I pray God is each one of their minds, hearts and hands. God can do miraculous things, and His will be done. As much as we don’t understand it now, I am so thankful each of you know the unfailing love of God, as you need from minute to minute in this trial that you are facing. I pray You all know and remember, you all feel how He is lifting you up and holding you, as He is taking care of Bennett in the way He has planned. I will continue to pray for Bennett, and for each of you. God bless you all!

  21. My thoughts and prayers are with you. Words simply can’t express the devastation I feel for you, so I will just say that I’m sorry. I’m so very sorry.

  22. Even though I have never met you or your precious Bennett, I have followed your blog of hope, faithfulness, and belief. From the beginning of your journey my sixth grade students at First Baptist Christian School have prayed for you. My local and extended families have prayed. Davis has it right. His brother is in a Win-Win. My dad was a minister, and he taught me this attitude during his nine and a half months battle with cancer. Physical healing, we win. Perfect healing, we win. We will continue to pray you through this “testimony in the making.”

  23. My heart is so heavy for your whole family. I will continue to pray as I have since the day I met you. I can honestly say I have been blessed to have met Bennett. I will pray for god’s options now.

  24. I am sending you love and unending hope. I am praying my heart out for all of you. I have been where you are standing, two years ago. It is exhausting when hoping and mourning at the same time. Be gentle with yourself.

  25. I am praying for all of you. I know how hard this is, as I just lost my sister 4 months ago to this horrible disease. Nothing anyone says will make you feel better but just know there are a lot of people out there praying and sending love.

  26. Praying for Bennett and your whole family. 1 Peter 5:7…at a loss for those comforting words we need to say. Hugs and more hugs to you all.

  27. You don’t know me, but a friend of ours has shared your story and I’ve been following it for some time. What you shared today is so heartbreaking, but even thru your sadness, I can see you are rejoicing in The Lord and what He can do and is doing.

    This reminds me if something I read recently, and I share it because I think it will encourage you. It’s a little wordy, but worth it.

    A quote from D. Martyn Lloyd Jones,
    “There is all the difference in the world between rejoicing and feeling happy. The Scripture tells us that we should always rejoice [Phil. 4:4]….To rejoice is a command, yes, but there is all the difference in the world between rejoicing and being happy. You cannot make yourself happy, but you can make yourself rejoice, in the sense that you will always rejoice in the Lord. Happiness is something within ourselves, rejoicing is ‘in the Lord.’ Take the fourth chapter of the Second Epistle to the Corinthians. There you will find that the great Apostle puts it all very plainly and clearly in that series of extraordinary contrasts which he makes: ‘We are troubled on every side (I don’t think he felt very happy at the moment) yet not distressed’, ‘we are perplexed (he wasn’t feeling happy at all at that point) but not in despair’, ‘persecuted but not forsaken’, ‘cast down, but not destroyed’—and so on. In other words the Apostle does not suggest a kind of happy person in a carnal sense, but he was still rejoicing.”

    So, all of us reading the things you’ve shared are feeling a fraction of what you are feeling. We are troubled with you, we are perplexed, we are cast down….. But we are not distressed, not discouraged, and not in despair. Thank you for being a real life, relatable example of how you can rejoice even in the face of something like this. And thank you for sharing your grief and for sharing your faith in a God that is in the business of healing all the broken things in the world. Oh how we all long for that day!

  28. How this made my heart hurt, tears fall and also rejoice at your faith. God is pleased with your family, loves you more than any of us and is using you to grow our faith. Still believing, mourning and praying for each of you. You are loved by many, Karen Jennings

  29. As I write this with tears streaming down my face, I mourn with you, I pray with you and I won’t give up hope for a miraculous healing for Bennett. I never gave up hope with Kelly. Ben and Megan, these steps that you are going through now are steps of God carrying you…..you don’t know where to go next, but God does.

  30. Tears and prayers – so hard to understand “the fellowship of His suffering” but to know He walks through it with you – much love and hugs, Gayle & David

  31. I am praying for ya’ll. I know GOD has a plan. I am praying for your hearts to stay strong even when it is breaking. I am praying for ya’ll to have strength. There is so much I want to say and feel for ya’ll I don’t know where to start. Your faith is amazing. I have been praying with ya’ll from the beginning and I will until GOD’s will is known.

  32. Your daughter Reide was in my son Bear’s class at Asbury and I have followed your story from the beginning. My heart is so full of tears for all of you. The unimaginable. Your faith in God is so amazing and truly an inspiration. Thank you for sharing it with us. Lifting you all up in prayers.

  33. I am praying for you all. You have to know that my faith has wavered over my own trials recently, but your family has led be back to Jesus. What an amazing family you have. I will continue to lift you all up every single day.

  34. As part of the Church Family that surrounds Your little Family, Sue and I mourn when you mourn. We laugh when you laugh and We believe with you in God’s goodness and greatness.

  35. Megan & Ben,

    There simply are no words. My heart breaks for you. In your pain I realize there are so many things that I am thankful for. Things that so many of us take for granted each & every day. I stand with you in prayer for Bennett as so many others do!

    We love y’all!
    Cheryl, Corey, Cade & Claire Britt

    “Praise be to the Lord, for he has heard my cry for mercy. The Lord is my strength and my shield; my heart trusts in him, and I am helped. My heart leaps for joy and I will give thanks to him in song. The Lord is the strength of his people, a fortress of salvation for his anointed one.”

    Psalm 28:6-8

  36. My heart aches for you as I read about this precious little boy. We just went through major heart issues with new twin granddaughters. I, like you, know God is in control and we trust God for healing. As I told my pastor one day, it’s a whole lot easier being the encourager than the one going through the storm ! I will be praying for Bennett as well as your entire family.

    1. My heart aches for you as I read about this precious little boy. We just went through major heart issues with new twin granddaughters. I, like you, know God is in control and we trust God for healing. As I told my pastor one day, it’s a whole lot easier being the encourager than the one going through the storm ! I will be praying for Bennett as well as your entire family.

  37. I Believe God

    The lyrics to I Believe God says it better than I could ever say:

    I believe God
    I believe
    His word is true
    I believe God
    What He said He will do
    I believe God
    He will always come through
    I will choose to believe
    I believe-God

    There comes a time in every believers
    life that your faith will be tested
    And whose report will you believe?
    You must believe the report of the Lord.
    Make a choice to believe God, no matter
    what you’re going through, no matter what
    your situation. No matter how bad it looks,
    trust God. Believe that He’ll make a way for
    you. Trust His word. Choose to believe

    So for dear sweet Bennett and your family…I BELIEVE GOD.

  38. As a mother and grandmother, I cannot begin to know your fear and pain, but as a sister in Christ I know that you know that God is good, however He chooses to heal Bennett. We know that however God chooses to work, it will be miraculous. Our prayers are for Bennett and ALL of you at this time.
    We pray for a healing that will allow Bennett to grow up and be a witness to many of God’s grace and mercy.

  39. I am a stranger, a friend of a friend of a friend on Facebook. But I read this and my heart aches for you and your family and your sweet boy. I hope you find peace. I hope that the love and good thoughts being sent your way from your friends and family, and from strangers like me, surrounds you during this difficult time, and buffers some of the pain. You are not alone.

    Lots of love and good thoughts.

  40. Mourning and believing with you Ben and Megan! I love Davis’ simple realization. Life here or life in Heaven…amen. I am praying for peace, comfort, relief for Bennett and that our Lord will continue to be your ever present help in times of trouble. We love you all and are praying continually!

  41. Praying for Bennett and your family. When you put one foot in front of the other, know that God is there before you guiding you and holding you.

  42. Praying in faith, without ceasing for little Bennett & you & your family ~ we are all here & also, there with you in spirit as you face this giant in the Name of the Lord Jesus, knowing you are doing the best you can & remembering the battle is the Lord’s & what’s left is faith, hope & love ~

  43. I weep as a read your latest post. You don’t know me but I know your family and have been praying for your little warrior. His ways are perfect and as Davis said either way Bennett wins. My faith has been strengthened and my love for the Father renewed as I have read your blogs. Be assured that none of this has been in vain. I will continue to pray, believe and expect a miracle for Bennett.

  44. I’ve been where you are with my little daughter, Angel, and I know it’s only God’s grace that carries us through. When the emotional pain is so deep that we forget to breathe, He knows & He cares…and so do all your friends out here. Please know that we mourn Bennett’s suffering and we believe in the Great Physician Who knows just what we need. Love & Prayers.

  45. I continue to pray for your precious Baby Bennett. I can’t tell you how your Faith is such an encouragement . I feel your pain through your posts. May God continue to hold you all in His loving arms and give you the strength you need now and in the following days, weeks, months and years. I pray Baby Bennett will not experience pain and God will prevail.

  46. Prayers and hugs. I am glad you can see all of the love and support you have. One moment at a time.
    The majority of us cannot even imagine what you are going through.

  47. Now may the Lord of peace himself give you peace at all times and in every way. The Lord be with all of you. 2 Tes.3:16. Thank you for show us the meaning of faith and peace in Christ in all season of this life. From Jakarta, We keep you in our family prayer.

  48. I am mourning and praying for Bennett’s comfort and your pain. I thank you for sharing this journey with us, and I will continue to have faith that God can heal Bennett.

  49. Even though we’ve never met, I’ve been following your posts praying for God’s healing for Bennett and strength for you and your sweet family. My heart breaks as I read this most recent post. Even while you’re walking through the most difficult of days, the faith you share with us is so inspiring. It has brought me to a spiritual place that I’ve never been. I will continue to pray for comfort and a healing miracle for Bennett; as well as strength and peace for your family. God bless you!

  50. We have been praying for your precious Bennett through his journey..Mary Wagner has been posting about him. We have been where you are..our grandson, Corbin, was treated at St. Jude at the age of three, being placed on an experimental protocol. He is now a healthy 12 year old…We are praying that the treatment that your child needs will be made available to him…and in the meantime the our Sovereign God will provide complete healing for your precious child, and the His Will prevail in all matters….bringing peace and comfort to you at this painful time in Your lives.

  51. You guys are in mine and Jeannie’s prayers. So sorry for the news, joining you in trusting God no matter what. Asking for a miracle of course, but also asking we realize how much the Lord does indeed love Bennett…even now.

  52. I’m holding your family in my thoughts and prayers. We have a two year old little boy with stage four neuroblastoma, and my heart breaks for your news and for what you’re having to process right now. Thank you for sharing your honesty, heartache, and prayer requests with us through your blog. I’ll hold you very close in my heart and lift your family up in prayer. – Lesley Ryan

  53. The Great Physician is here now! He will pick up where the natural doctors left off. I believe in miracles! I believe in Jesus! And I know He is healing Bennett as we speak! In Jesus’ name!

  54. Praying for your precious Bennett and praying for your hearts. Praying above all things for God to heal Bennett and take away his pain. I know and trust that God has got this…..he will heal Bennett one way or another!! My heart aches with you and I will not stop praying for you.

  55. So very sorry to hear this news! We mourn for you and for Bennett. Thank God for the strength he has given you both. It would be impossible to deal with this without God’s love and grace. Even still it is so hard to understand this little man suffering so much.

  56. Sending PRAYERS for your hurting hearts…STORMING HEAVEN W/ PRAYERS for your Sweet Baby Boy Bennet!!! Asking GOD to Speak to your hearts and let you know that as much as you love Bennet …HE LOVES HIM EVEN MORE! And with HIS WORDS may you find peace!!! With heartfelt prayers, ~Rebecca~

  57. We are praying for your entire family. Praying that you would never lose sight of the victory found at the cross and that death has truly been conquered. We love you guys desperately and are praying that God draws near to each of you.

  58. I have been where you are. Even when we got this same news and our son started Hospice, we never gave up on Hope. We knew our God was and is big enough to handle the news. Our son is now in heaven and we still have our hope. It grows sweeter every day.

  59. There are no words, no comfort that can be enough for you right now. Your faith and trust in our Lord is sustaining your heart and your body. My nephew and I were talking about surrendering your will to God, just giving over your prayers and fears – a monumental task and a very difficult one. Prayers are always heard and if our Father’s plan to keep Bennett here in this life is to change, it will. If it isn’t his will, then Bennett will live in heaven just as Davis said. But the calm, the relief and peace once you’ve surrendered yourself to his will is indescribable. I too will live in heaven soon and the joy I feel for the opportunity to know my last days/weeks/months are limited so he has given me time to do the things I wanted to do for me and for my family. I am forever grateful for that. So many leave without the opportunity to live that final day – really live and not just breathe. Spend the rest of your lives with Bennett in the next days and weeks and relish the moments of your family, together here. When I get there, I’ll try to find Bennett and meet this beautiful soul for myself. Take care of each other…

  60. We keep on praying for little Bennett and for your whole family. God will never leave you or forsake you and in His timing He will answer. Don’t give up! We love y’all. Bob&Joyce

  61. Praying for your sweet family. Our hearts are heavy with you. Sometimes there are no words, but the Spirit intercedes for us with groanings that cannot be uttered. Praying for peace that passes understanding to fill your hearts.

  62. Praying. What else is there for us to do? Life before Heaven is hard and beautiful and a disaster and a miracle. We pray for you as you put one foot in front of the other.

  63. Praying for your sweet family. Our hearts are heavy with you. Sometimes there are no words, but the Spirit intercedes for us with groanings that cannot be uttered. Praying for peace that passes understanding to fill your hearts.

  64. God doesn’t always give us what we can handle, but what He can handle! Praying for your whole family and a miracle! Strong enough by Matthew west is a great song to listen to!

  65. We are still praying for a miracle for Baby Bennett. God knows us all better than anyone else, as He knows us from the inside out, and only He knows what is best for each of us and for each of our lives,
    so we also pray for His best for Bennett. Thank you for sharing your lives with us and especially for sharing little Bennett with us. Our prayers continue. Thank you Lord for your little saint Baby Bennett.
    Connie L. Parmenter God Bless

  66. I am sobbing with you and hoping against hope for a miracle, but also leaning into the promise of eternal life. Hoping and mourning… The Hebrews verse you mentioned is amazing. I’ve never read it like that before. My favorite parts were about living by faith and this: “But we are not of those who shrink back and are destroyed, but of those who believe and are saved.” Amen. Praying and praying for you all.

  67. There are no words that I can say to help or make this better!! I will pray for you and your baby boy. Love to you

  68. In that hour or even moment when Bennett’s breathing went from normal to labored The Lord was with him just as He was when Bennett took his first breath. His steadfastness doesn’t change when our circumstances do….praying the fullness of His power over your family and especially over your precious baby boy.

  69. I am just a tiny dot in this universe. My words are but a whisper in the ear of God. But he hears my prayers, as he hears the combined prayers of all the souls who call upon him. If life were easy, all prayers would be answered positively, but life is not always easy. Bennett is a child of God and no matter what the outcome, he walks with God. Keep praying for a miracle, as we all will.

  70. Ben and Megan,
    As I read your post for the third time today, tears falling each time, I was reminded of the “footprints in the sand”. Jesus will carry you through this time. Everything is in HIS hands. I love the simplistic reasoning of Davis. Bennett will be healed… only God knows where. We can rest in that knowledge. Thank you for the blessings you have both given so many of us during this trying time you are going through. Know you are loved, even at a distance! We are praying for you all!

  71. I was trying to thank you for acceptingh request to join the FB prayer page and it ended up looking like a request to post something…sorry. But thank you and God hold little Bennett and your family in His hands. My heart breaks for you as I read your posts and I know you’re inspiring many thru your faith who are struggling with similar issues. Peace and comfort to you all.
    From Sissy in White House, Tn (I came to know your story thru Camilla Dyer in Conyers, Ga.)

  72. Sometimes it is hard to understand all that you are faced with. God has the plan, we must put our faith in Him. Your faith has led your family on such a soul searching journey, the story is unfinished. Prayers are with Bennett and your whole family.

  73. I’m praying for you all, everyday; and lifting Bennett up to our mighty healer every chance I get. May you feel God’s presence in this time of gut wrenching anguish. I will continue to pray and cry out to The Lord,
    “Great is Thy faithfulness,” O God my Father,
    There is no shadow of turning with Thee;
    Thou changest not, Thy compassions, they fail not
    As Thou hast been Thou forever wilt be.
    “Great is Thy faithfulness!” “Great is Thy faithfulness!“
    Morning by morning new mercies I see;
    All I have needed Thy hand hath provided—
    “Great is Thy faithfulness,” Lord, unto me!
    Summer and winter, and springtime and harvest,
    Sun, moon and stars in their courses above,
    Join with all nature in manifold witness
    To Thy great faithfulness, mercy and love.
    Pardon for sin and a peace that endureth,
    Thine own dear presence to cheer and to guide;
    Strength for today and bright hope for tomorrow,
    Blessings all mine, with ten thousand beside!”

  74. Ryan & I are lifting up your family so heavily right now. We are still hoping for healing but are also mourning with y’all for his pain. I’m so sorry you’re going through this. And we are praying for strength for you guys at this point in your hard journey.

  75. Mourning & believing . . . Praying for all of you. Davis’s words are filled with such truth. Love you guys!

    Kayla & Nathan

  76. Your sweet son, his siblings, you both and all your loved ones are in my prayers! May God grant you all strength during this time. My love, prayers and God’s blessing be with you all!

  77. Ben & Megan,

    Our family and Calvary Chapel of Flower Mound (TX) will continue to pray, albeit with increased sorrow. Prayer groups lifted you up Thursday night and tonight. Tonight someone was moved to mention the power of your witness at St. Jude.

    Thank you for continuing to share this journey, even through this valley of the shadow of death. Fear no evil. Know the rod and staff of His comfort. Whatever happens, know that your family will dwell in the house of the LORD forever. Prayers will continue to go up.

    P. S. Your posts, through the Spirit of God, are changing lives.

    Chris Corbett

  78. A friend of mine went thru a tough time 2 years ago when they lost their 6 month old baby girl & he & his wife have written a few songs out of that heartache that have touched so many. Here is one of them titled Hold Me Still – whether it’s thru holding on for a miracle or mourning for the medical news you just received, I pray you feel God’s love holding you through

  79. My heart is breaking for your family. My tears began to flow from sadness at first and then with another emotion I can’t quite explain. I am truly humbled by the faith that you and Ben have shown during all these ups and downs. I am thankful for a God who is holing you close every moment of this journey. I am awed by the team at St. Jude’s that God put in place for you. I thankful for our loving and faithful God, who is shining through your entire family. I will mourn and believe with you every moment!!

  80. Dearest Coleman’s…I’ve been following your blog since Ben’s journey started and although I’ve never commented before now, please know that your sweet baby has been in my prayers since the beginning. I, too, have lived this journey. My son battled Neuroblastoma at St Jude and now lives in heaven. I know your pain…I’ve mourned while believing…I’ve let go and let God…and today, with Gods grace and comfort, I live each day with him in my heart, believing that I will see him again. There is nothing I can say to ease your pain, but I hope you can find some comfort in knowing you’re not alone.
    Praying for God’s miracle and grace during this most difficult time.

  81. Praying for your family and for Bennett since a friend shared your blog. My husband has cancer so I understand some of your pain but not all. Bathing you in prayer. “Be still and know that I am God. I will be exalted among the nations, I will be exalted in the earth” Psalm 46:10. May this bring you as much peace as it does for me with everything I just can’t understand in Gods will. Interceding for you all.

  82. I just started attending the bayou church I heard about this tragic story..I want to let you know I will prayer for baby Bennett and keep.you all in my prayers god bless

  83. It seems like there are words of comfort for nearly every situation except the grief over the suffering or loss of a baby. There were so many thoughts expressed when I lost my daughter years ago. I found a few words that did help and I pray that you all will find some peace in knowing that your family and this situation have touched so many lives. Just remember that God is his and he is God’s, and no matter the outcome you will still be together someday. Sending prayers to all of you…

  84. We cried when we heard this news. We feel your hurt and we pray for the most comfort and love, for Bennett and all of you. We believe <3. God is good. His plans are perfect.

  85. Megan and Ben, I do not know you or your family, but I do know your God. I will pray for Bennett’s healing, but I will also pray if God’s will is not our will, that He will wrap you in His arms of love and carry you are this difficult time, no matter what the outcome. I am sure right now there is only one set of footprints because He is carrying you all! My prayers are with you!

  86. When we are trapped in the present it is so hard to find God and to understand His will. The amazing thing about faith, is that we must BELIEVE IN ADVANCE for things than only make sense in reverse. As we pass through trials we see miracles, we see growth, and sometimes we see pain. But in the end, we always see God working in our lives and we appreciate ever more His sovereignty.

  87. Dear Ben & Megan,

    Know that your family has been continually on my mind and heart. Know that I pray for you and Baby Bennett daily. We cannot know God’s plans. However, we can bet that he has a great one. Something we may not know now, but it will be revealed. The miracle of God’s healing on this side of heaven is the one thing I pray for Bennett. I ask God to give you strength and discernment each day as you walk this journey.


  88. While reading this, the song that played in my head was “your love” by Shane & Shane… So I turned that on, prayed and on came “praise Him”… Both of which seemed perfect… Praying for your family during this time.

  89. I am grieving and believing with you tonight as I pray on behalf of your family.

    Now may the God of hope fill you with all joy and peace in believing, so that you will abound in hope by the power of the Holy Spirit. (Romans 15:13 )

  90. Dear Ben, Megan and family,
    I don’t know you personally but received a prayer request from Kathy McDonald. I have cried and prayed for you today. God LOVES you so very much!!! God’s heart is breaking too!!! Living your faith is such a testimony to the rest of us that can’t even imagine where you are or how you are feeling and yet you love God and BELIEVE!!! Sheila Walsh from Women of Faith once said in her testimony about waiting for answers on a diagnosis of her son “God is the same whether we get the answer we prayed for or the answer we dread”. God loves Bennett more than you do. May you be filled to over flowing with God’s peace and presence as you walk this difficult road. I’m glad you are St. Jude. I have been a donor for many years. It is a joy to know that you are benefiting from St. Jude’s generosity <3

  91. Ben & Megan,
    Spoke with Mr. Coleman last night and blessed by your faith. Father knows all and we cant fathom the plan. I walked a similar valley losing my 2 year old to heart disease. I am here for you in the days to come. I shall walk this valley with you as He surely will carry you. Blessed be your union, love, strength, and courage during such trying days. Few are called to this depth. Father told us, “I have your son, and you have Mine” That grace truly is sufficient. I love you guys.

    Wayne Owen

  92. I just wanted you to know from 1 St. Jude mom to another, that I am praying for you and sweet Bennett. We had the pleasure of meeting you and your family at the St Jude photo shoot for Thanks and Thanksgiving back in Feb, I believe it was…. Bennett and my Elizabeth took some pictures together. I will be going by to view those pictures this week at our weekly St Jude visit for chemo. I don’t have any words to ease your pain, but just know that you and your family are on my prayer list. God Bless you all and sweet Bennett.

  93. Praying for each of you and letting you know how deeply grateful I am for your faith, that has increased my faith. With love and blessings.

  94. I’ve posted before but I remembered something that has lifted me in the darkest hours. Its the “Be At Peace” prayer by Saint Francis De Sales.

    Do not look forward in fear to the changes in life;
    rather look to them with full hope that as they arise,
    God, whose very own you are, will lead you safely
    through all things; and when you annot stand it,
    God will carry you in His arms.
    Do not fear what may happen tomorrow;
    the same understanding Father who cares for you
    today will take care of you then and every day.
    He will either shield you from suffering
    or will give you unfailing strength to bear it. Be at
    peace, and put aside all anxious thoughts and

  95. Dearest Megan and Ben,

    We stand alongside hundreds of our Brothers and Sisters in Christ, praising God for the life of Baby Bennett. He will have a special place in our hearts. Although we never had the joy and privilege of meeting him, we picture him with the beautiful smile of Reide and the endearing personality of Davis. If our arms would stretch that far, ours would hug each of you and we would tell you how much we love you. We love our God and we trust him. We know Little Bennett is pain free after such a courageous battle. Praise God. “Trust in the Lord always; for the Lord God is the eternal Rock.” Isaiah 26.4

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